Today’s guest blogger is Maureen Lilly, Executive Director of the Children’s Cause for Cancer Advocacy (CCCA), a leading national advocacy organization working to achieve access to less toxic and more effective therapies, expand resources for treatment, and address the needs and challenges of childhood cancer survivors and their families. CCCA aims to ensure that these needs and perspectives are integrated into the highest deliberations of cancer policy.
September is Childhood Cancer Awareness Month and we at the Children’s Cause for Cancer Advocacy are using this opportunity to spread the word that cancer is the leading cause of disease-related death for children in the United States.
Every day , more than a schoolroom of kids is diagnosed with cancer. Fortunately, much progress has been made in treating children with cancer in the last 50 years, resulting in higher survival rates than ever before. Today, there are about 350,000 survivors of childhood cancer in the US. While this is great news, we’ve also learned that cancer survival comes with a host of other unique long-term mental and physical health care concerns.
We know the statistics about childhood cancer may seem daunting. But rather than scare us away, the needs of children with cancer have galvanized us to action to ensure that all children with cancer and childhood cancer survivors have the physical and mental health care services and treatments they need to live long, fruitful lives.
To this end, we are convening a policy conference in Washington, DC on October 10-11 to build a cadre of advocates for children with cancer, entitled “Translating Our Voices Into Action: Challenges in Pediatric Cancer Advocacy.”
This conference will bring together leading advocates in the childhood cancer community to expand their knowledge and understanding of state and federal policy, advocacy, and strategy, and develop skills to advocate for children with cancer.
We hope to harness the passion, dedication, and commitment of leaders, families, friends and communities, who support children with cancer every day in so many ways. Together, we can mobilize to conquer childhood cancer.
Learn more about the Children’s Cause for Cancer Advocacy and the outcomes from this important policy conference by visiting our website (http://childrenscause.org/), Facebook (http://www.facebook.com/ChildrensCause), or Twitter (@childrenscause).