Aaron J. Kowalski, Ph.D., is JDRF’s first Chief Mission officer and serves as a key link between JDRF and the broad diabetes community. Dr. Kowalski combines his professional experience as a scientist with his personal experience of living with type 1 diabetes (T1D) for over 30 years to help guide and champion JDRF’s programs focused on creating a world without T1D. Dr. Kowalski is an internationally recognized expert in the area of diabetes technologies and has been a leader of JDRF’s Artificial Pancreas Research Project, a multi-million dollar initiative that began in 2005 to accelerate the progress toward automated insulin-delivery systems.
Everyone who supports JDRF is looking for ways to cure, prevent and treat type 1 diabetes (T1D), and when we’re anxiously awaiting the next breakthrough therapy, we all hope it moves quickly through the phases of clinical trials so that the T1D community can benefit. But did you know that more than 80 percent of clinical trials are delayed or fail because doctors cannot find enough patients to take part in their research?
About 20,000 participants are needed for T1D trials in the U.S., but 85 percent of people never take part in research because they don’t know about the opportunities, creating a massive shortage that could lead to delays in important T1D therapies reaching those who need them.
To help close the gap, JDRF and health technology startup, Antidote (formerly TrialReach), partnered to create Clinical Trials Connection, a new matching tool launched in July that makes it much easier to find and participate in diabetes research. People living with T1D can visit JDRF's website and answer a few questions about their condition and they’ll be matched to the clinical trials for which they are eligible.
While many clinical trials were already listed on clinicaltrials.gov, people didn’t find it easy to navigate and were confused about which trials were a fit for them. So, we worked to develop and offer a free tool that was more intuitive and engaging for people with T1D.
JDRF and Antidote are continuing to work together to make the tool even better. We recently improved the tool so that people searching from locations outside the U.S. will be able to find trials in their area, as long as the trial is listed on clinicaltrials.gov. Eventually, registries beyond clinicaltrials.gov will be added to the search database to expand the global accessibility of clinical trials.
Finding new and improved medicines is only possible through the help of people like you. Every clinical study participant provides valuable information that might help improve medical research and knowledge. Without people like you, clinical research would not be possible.
There are many reasons why people take part in clinical research studies, including the chance to:
- Help in the development of a medicine that may benefit people in the future
- Receive study-related monitoring for their health
- Help find new cures and treatments for the future
You can try out the widget at http://www.jdrf.org/clinical-trials-connection.
To learn more about clinical trials, visit www.LillyTrialGuide.com.